Courtney Lund is a professor and writer who is currently working on a memoir about her relationship with her disabled brother, Gavin who suffers from AGS Aicardi-Goutieres Syndrome.
Courtney received the news about her four-month-old baby brother when she was 19 and in college. She dropped out of college to be with him and her family -- and to learn to love him, despite his death sentence.
There was nowhere for Courtney to turn for help as there was no resource to help people who had to cope with losing a sibling, to a disease or death. Feeling like she was up against the impossible, while also feeling